Here is the full transcript of Canadian television presenter Tamara Taggart’s TEDx Talk: Two Conversations That Changed My Life at TEDxSFU conference. You can also watch this on YouTube along with this transcript. To learn more about the speaker, read the bio here.
Right click to download the MP3 audio:
Tamara Taggart – Canadian television presenter
Hi. I’ve had two conversations that have changed my life. Two conversations that are both important. They’re both ongoing conversations. They are conversations that really changed everything for me. And it wasn’t until I had the second conversation that I realized how wrong the first conversation was.
So this picture here is of me in the delivery room, minutes after my son Beckett was born. And it was a big moment as you can imagine. My husband Dave had just brought Beckett over. He’s so cute, and he was beaming. Dave was beaming. He had tears in his eyes. I had tears in my eyes. And I love this photo, because it’s — there’s so much happening, there’s love and excitement, and really just a moment of realizing that we created this beautiful being. And we were first-time parents, which if anybody has ever been a parent for the first time, it’s pretty exciting. It continues to be exciting. We have three children now.
The first conversation that I want to talk to you about was a conversation about my son. So five days after Beckett was born, my husband and I were at home. And Beckett was downstairs, being oohed and awed at by his family, his grandparents. And the phone rang and it was a new doctor of ours. And that doctor phoned to confirm to Dave and I that the blood test that Beckett had had in the hospital confirmed that Beckett had Down syndrome.
So as you can imagine, we were shocked. It was unexpected and we were upset, because we weren’t expecting it. But it was the tone of that first conversation that really hinted at all the conversations to come about our son. And in that conversation with that first doctor, we heard sadness, and it was a tone of really just somebody that felt bad for us, that they were telling us this news. And in that tone of sadness, the doctor even said to us, “I’m sorry to tell you”, we realized, you know, we’re not sorry that we have a beautiful baby boy. This is a beautiful baby boy and we’re thrilled. We weren’t expecting him to have an extra chromosome but he does and we still love him.
But that first conversation with that first doctor was really the first of many conversations to come. And Beckett is seven now. So I have a lot of experience and my husband has a lot of experience in negative conversations about who we think is our perfect son.
So as we moved forward and saw doctor after doctor after doctor after doctor, we heard more negative things about our son. We heard all the things that our son wouldn’t do and couldn’t do and won’t do. We heard how Beckett had a greater chance of having leukemia. We heard about Beckett having a greater chance of Alzheimer’s when he got older. We heard that Beckett wouldn’t walk when he was supposed to walk and he wouldn’t talk when he’s supposed to talk. And he might not go to a regular school.
We heard that — and it was one of the worst conversations I ever had – somebody, a medical professional told me that, because I was really upset and worried about Beckett going to school when he was that big, that’s what I was worrying about. I was worrying about Beckett going to school and how he would be treated. And if he would be treated as a normal child. And that person told me that, yeah, it’s a true worry. People with Down syndrome are lonely because nobody ever wants to be their best friend. And it’s a pretty horrible thing to say to a new parent. It’s really a horrible thing to say to any parent about their child. It’s a horrible thing to say to anybody about anybody really.
My husband and I were concerned when Beckett was — this is him when he was one — we were concerned because Beckett wasn’t eating very much and he’s like a really skinny guy. And so we went to the doctor and we said, you know, we’re a little worried; Beckett’s pretty skinny and he’s not eating very much. And the doctor said to us, oh you don’t have to worry about him not eating very much. He has a lifetime of being overweight ahead of him — exactly how I felt and how my husband felt.
And so as you working in stereotypes about people and that’s what you are feeding — medical professionals are feeding to parents of children who they think are perfect. And sometimes all they can see is the science and they don’t see the potential that I see in my son.
I have had doctors use the word retarded around me and not when they’re talking about my son but when they’re talking about a jacket that they saw at the mall that was overpriced and how retarded it was that it was overpriced. You don’t talk like that to a parent of a child with challenges or special needs. It’s not right, because they’re people. We’re all people.
And so we continued on this path of having these negative conversations about our beautiful boy. And, you know, I need to tell you that we didn’t find out Beckett had Down syndrome until after he was born and I have many friends who found out that they were carrying a child with challenges or special needs, including Down syndrome when they were pregnant. And those conversations with those women and their husbands about the baby that they were carrying were far worse and far more negative — far more negative, because there wasn’t an actual baby to be holding.
And so I feel quite lucky that we didn’t find out until after, because my husband and I are pretty strong people and we marched forward and we love Beckett. And we now know that we control who’s in Beckett’s life and who says what about Beckett. But it took a long time to get there. Beckett is 7 years old now and it took a very long time to get there.
So the other conversation I want to talk to you about that gave me the big epiphany happened two and a half years ago. So two and a half years ago I met with a whole new set of doctors. Beckett was four. Our daughter Zoey was three and our other daughter Poppy was one. And we were talking about cancer and we were talking about my cancer: I had been diagnosed with a rare form of cancer. And I had a 10-centimeter tumor taken out of my small intestine and it nearly killed me and it was awful as you can imagine. It was the worst thing that’s ever happened to me. There’s no doubt about it.
It was terrifying for me and my family and my friends, my co-workers. And I honestly – we didn’t know what to do. It was so unknown about the future I felt.
And so when I went to go meet that first doctor, my first oncologist, they didn’t know what it was when I was in the hospital and they removed this tumor out of me. But everybody in the hospital was amazing and they were so kind and so hopeful.
And then when I went to go see the oncologist who had my pathology report that I waited 11 days for, that oncologist was amazing. He was loving and positive and empathetic. And most of all, he was hopeful. He told me all the great things about having this tumor taken out of me. He told me all the great things that it would actually bring me in my life and how my perspective would change, and how — you know, it was all going to be OK.
And I specifically asked him if this was going to be what kills me. And he said to me in the short-term no, in the long-term not if I can help it and off I went. And it was after that conversation and during my recovery that I realized how wrong that first conversation about my son was and how — when my husband and I were holding our beautiful boy, we were faced with negativity and all the things that he wouldn’t do and all the things he won’t do and all the risks that come with having an extra chromosome.
We were told that Beckett, you know, won’t get married and he won’t go to university and he’ll never drive and he won’t have kids. He might never live independently, probably won’t have a regular job.
We were told all these horrible things. Yet my big ugly nasty tumor that nearly killed me was wrapped up in a lovely bow and everybody talked to me in such a positive manner. My son is not cancer. My son is not a tumor, not even close. Nobody told me that he was going to walk into a room and he was going to light it up. Nobody told me that he was going to be incredibly musical – my tumor is not musical.